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Cancers·Multisystem Langerhans cell histiocytosis (with or without risk-organ involvement)

Countries and centresMultisystem Langerhans cell histiocytosis (with or without risk-organ involvement)

Back to the Multisystem Langerhans cell histiocytosis hub →

Cases by country, the UK and NHS pathway and other country lenses, the expert centres with trials on record, and the centres named on this cancer's subtypes.

Countries and centres

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Cases by country

Cases by country · GLOBOCAN 2022

All countries →

No country-level case numbers. This cancer is not mapped to a GLOBOCAN site.

Expert centres

Where the expertise is

Expert centres

15 centres in 8 countries · 1 with a trial for this cancer on record · second-opinion finder →

Choose a region from the globe in the header to mark centres near you.

15 centres


Histiocyte Society Pitman · consortium	United States	none recorded	1	not matched	-	none recorded	-
University of Wisconsin Carbone Cancer Center Madison, WI · cancer center	United States	NCI comprehensive	0	424	10,177	IMRT / IGRT (modern external beam)Cytotoxic chemotherapy Off-the-shelf cancer vaccines MR-guided adaptive radiotherapy +1	-
Indiana University Melvin and Bren Simon Comprehensive Cancer Center Indianapolis, IN · cancer center	United States	NCI comprehensive	0	323	5,574	Platinum agents Cytotoxic chemotherapy Allogeneic stem cell transplantation	-
University of Maryland Marlene and Stewart Greenebaum Comprehensive Cancer Center Baltimore, MD · cancer center	United States	NCI comprehensive	0	301	4,749	Proton therapy SBRT / SABR (stereotactic radiotherapy)Allogeneic stem cell transplantation TCR-T cell therapy +1	-
Leeds Cancer Centre, St James's University Hospital Leeds · hospital	United Kingdom	none recorded	0	254	3,432	MR-guided adaptive radiotherapy IMRT / IGRT (modern external beam)Histopathology & immunohistochemistry	-
University Hospitals Birmingham / University of Birmingham Cancer Research Centre Birmingham · hospital	United Kingdom	none recorded	0	220	1,999	CAR-T cell therapy Cytotoxic chemotherapy Allogeneic (off-the-shelf) cell therapy	-
Fred & Pamela Buffett Cancer Center Omaha, NE · cancer center	United States	NCI clinical	0	190	5,384	Allogeneic stem cell transplantation High-risk pancreatic surveillance (CAPS / PRECEDE)	-
Tohoku University Hospital Sendai · hospital	Japan	none recorded	0	184	1,194	Germline (hereditary) testing Whole-exome & whole-genome sequencing Histopathology & immunohistochemistry	-
Juravinski Cancer Centre / Escarpment Cancer Research Institute Hamilton, ON · cancer center	Canada	none recorded	0	126	1,460	IMRT / IGRT (modern external beam)CAR-T cell therapy Allogeneic stem cell transplantation	-
Wellcome Sanger Institute Hinxton · research institute	United Kingdom	none recorded	0	97	1,204	Whole-exome & whole-genome sequencing CRISPR functional genomics Single-cell & spatial profiling Patient-derived organoids +1	-
Homi Bhabha Cancer Hospital and Mahamana Pandit Madan Mohan Malaviya Cancer Centre, Varanasi Varanasi · cancer center	India	none recorded	0	77	259	Cytotoxic chemotherapy Global oncology and access in low- and middle-income countries	-
Koo Foundation Sun Yat-Sen Cancer Center Taipei · cancer center	Taiwan	none recorded	0	72	337	SBRT / SABR (stereotactic radiotherapy)Brachytherapy	-
Uganda Cancer Institute Kampala · cancer center	Uganda	none recorded	0	71	274	Cytotoxic chemotherapy HPV & HBV vaccination Brachytherapy	-
Butaro Cancer Center of Excellence Butaro · cancer center	Rwanda	none recorded	0	5	9	Cytotoxic chemotherapy Digital pathology & AI	-
Masonic Cancer Center, University of Minnesota Minneapolis, MN · cancer center	United States	NCI comprehensive	0	not matched	-	Allogeneic stem cell transplantation CAR-NK & CAR-macrophage Allogeneic (off-the-shelf) cell therapy	-

These are the things we can measure; they are not a ranking of quality. Each column is a field on the institution record or a count over what OnCo has linked; a centre that treats many patients with Multisystem Langerhans cell histiocytosis but is thinly recorded here will look small.

Not known: OnCo holds no case-volume or outcome figures for centres, so none are shown. Where a national audit or registry publishes them, the centre's page links to it. Default order: Newsweek rank, then trials for this cancer, then research output.

Seeking a second opinion: ask your oncologist for a referral to a high-volume centre; most accept records and pathology by mail or telehealth. In the US, use the NCI's Find a Cancer Center tool or the nonprofit Cancer Commons, which navigates options for advanced cancers at no cost. The second-opinion finder explains how referral works in your country.