Loading
Instead of asking twenty hospitals for permission, a researcher would apply once to a single national body that can grant access to all cancer records under one set of rules.
The European Health Data Space regulation (2025) creates health data access bodies that grant permits for secondary use across all holders in a member state. The proposal is a cancer-specific instance: one permit authority, one data catalogue, one set of standard extraction pipelines (OMOP and mCODE), and statutory deadlines for holders to comply. England's NHS Research Secure Data Environment network and Finland's Findata are working precedents; the US has no equivalent.
Every source this page cites, grouped by who published it. Grouping is read from the web address, not assigned by hand.
A source that has moved or gone is reported by the weekly link check. /audit/